Hi! My baby girl was born at 39 weeks gestational with a level 4 brain bleed. Still to this day (8 weeks now) the specialist do not know how this happened! So far she has been hitting all of her milestones! Her neurologist has her on anti seizure meds to prevent her from hurting her brain even more just in case (she did have an eeg and that showed no signs of activity). Her neurosurgeon informed us that there is a chance that she could end up with some form of CP but they are not sure! As of right now it is a waiting game and I completely understand how you feel. Luckily babies brains tend to rewire themselves to make up for the damaged spots on the brain (everyone keeps informing my husband and myself of that). Just remember that CP has a wide arrange of severity (you have children that might have a little difficulty with fine and gross motor skills but are cognitively completely there and you have the most severe cases where it effects the whole body including the brain). He seems like he is cognitively there except with some gross motor skills that are concerning and that is why they have PT and OT.
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