Birth Defect Malrotation Awareness
Hi, I am here and Im sorry if Im on the wrong board but I am trying to bring awareness to intestinal malrotation. It occurs 1 in 500 babies yet the March of Dimes doesnt mention it as of now. My son...
View ArticleRE: Trying to see the positives
Hi! My baby girl was born at 39 weeks gestational with a level 4 brain bleed. Still to this day (8 weeks now) the specialist do not know how this happened! So far she has been hitting all of her...
View ArticleTrying to see the positives
Hello, this is my first post at this site. My wife and I are in the process to adopt (13 months, 9 months corrected) and have been presented with an opportunity which we are very seriously...
View ArticleRE: Duodenal Atresia
Hi Kimr0810. My Anna Rose was born in November at 35 weeks with duodenal atresia. I just thought I'd reach out to see how things are going for you as I was searching the web late at night just 2 months...
View ArticleDuodenal Atresia
Hello - so glad to have found you all! I am 34 weeks along and at 30 weeks, Doctors told me they suspect our son has duodenal Atresia. There is not a clear "double bubble" but there does look to be a...
View ArticleNew to forum
I was had an "Upside down stomach" at birth....10 days old. I was given up for dead but my father said he grabbed me up and took me to a city hospital and here I am at 66. My intestines are still...
View ArticleRE: Looking for someone with a similar experience
I am so sorry, mabye she was needed in heaven.
View ArticleRE: Looking for someone with a similar experience
I feel your pain and astonishment. We recenlty lived something similar. I had a c section at 41 weeks cause of failed induction, and delivered my princess eleonore (first baby) on april 16th. She also...
View ArticleRE: Looking for someone with a similar experience
HI Welcome to share. I am sorry for your loss. I too thought I was having a normal healthy pregnancy 4 years ago with my second child after having a perfectly normal pregnancy and healthy baby with my...
View ArticleLooking for someone with a similar experience
This is very difficult for me. On March 26th I went into labor very unexpectedly at 28 weeks pregnant. Up until that point we thought we were having a normal, healthy baby. Our daughter, Kara, was born...
View ArticleMy unborn children will be born early!
They are both measuring small! Like they were 2 weeks younger (in the womb) than they should. They are due Oocrober, but will be born in 2 1\2 weeks. I can't believe they will be premature like my...
View ArticleRE: Birth Defect Malrotation Awareness
Thank you for sharing your story. My son was also born with malrotation of the intestines which was corrected with the LADD procedure after he was throwing up and couldn't stop. His presentation was...
View ArticleRE: My unborn children will be born early!
I'm so sorry that you have had multiple premature births. One was scary for me so I can't imagine having more. How are your babies doing now? I hope that all is well for you and your sweet babies. Cassie
View ArticleLooking for someone dealing with premie epilepsy, chiari malformation
My 4-year-old daughter was born 8 weeks premature. Recently, she was diagnosed with generalized epilepsy with focal seizures with altered awareness.In addition, they found that she has chiari type 1...
View ArticleDelayed Myelination - Share your story .
Hi all,I am a first time mom of a very beautiful baby girl, now 13months old. She was born at 34wks as she was an IUGR (Intra uterine growth restriction) baby. After birth her growth was still slow and...
View ArticleBirth Defects Awareness- My story
January is birth defects awareness month, and this is my personal experience as a birth defects parent. Please share your story here and offer support to others that may have a similar experience. In...
View ArticleBirth Defects Awareness Month - Share Your Story
January is Birth Defects Awareness Month. Has birth defects touched your life? If so, this is a safe place to join in a discussion and/or share your story. On a hot August day, nearly 8 years ago,...
View ArticleAutism linked to antidepressant use survey
Hello, my name is Cheyanne Johnson. I am a senior at JW MItchell High School and am taking part in the AP Capstone Research Program in my school. As part of the program, I must conduct research on...
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Practically Perfect in Every Way: Birth Defect affected families check in...
Having a child or family member with a birth defect brings its own uniqueness to our stories. Chat with other parents and family members and share your story.
View ArticlePosterior urethral valves and kidney failure
Hi, My oldest had PUVs (posterior urethral valves) and was born with kidney failure and a damaged urinary tract. He survived against the odds and will be 21 this April! I hope it is ok to post a link,...
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