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RE: Looking for someone with a similar experience

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HI Welcome to share. I am sorry for your loss. I too thought I was having a normal healthy pregnancy 4 years ago with my second child after having a perfectly normal pregnancy and healthy baby with my first child. He ended being born at 37 weeks and without a functioning brain. We ended up having to take my son off of life support at 14 days old. We too were told it was most likely genetics and it was heart wrenching to hear that. To think that genetics was the reason and future babies could be at the same risk. It is a very difficult thing to have to hear and live with. It is also very difficult to have to decide what to do about having more children. My son's genetic doctor gave us options on how to go through another pregnancy and to help maybe lessen the risk. She also told us to wait a year and really let us get through our grief and have a chance to make the best decision for us. That was the best advice I got and it helped. I personally was all over the place those first few months about how I wanted our family to grow...as time passed I was able to start really focusing on what I thought was best for my family. I wish that you didn't have to go through a similar experience and I understand how lost you are feeling right now. The best advice I can give is give it some time to really let yourselves grieve and process all that has happened and to also see what the test results come back with. Many hugs. Nicki

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