RE: Chromosome 6q deletion from 6q25 and duplicate of chromosome 12p
Hello and Welcome to Share. I don't personally have any information on this particular chromosome deletion but here is a link to the March of Dimes main site and they might be able to help you....
View ArticleChromosome 6q deletion from 6q25 and duplicate of chromosome 12p
Hi. If anyone has any information on this unique chromosome 6q deletion from 6q25 and chromosome 12p duplicate please message me, I would like to talk. Thank you.
View ArticleRE: Birth Defect Malrotation Awareness
Thank you for posting this thread!My son Eligh had malrotation and underwent surgery at 10 months. Â He is now almost two and doing very well! Â I was also very surprised at how common this congenital...
View ArticleDuodenal atresia in relation with overweight/obesity?
Dear all, Some of you will know my story, so a little update. We are from the Netherlands and our 4th daughter was born with da. Because of many complications she had in the first 3 years of her life 4...
View ArticleRE: Practically Perfect in Every Way: Birth Defect affected families check in...
As we start another year with Birth Defect Awareness Month lets check in with one another and share our stories.Thinking back to when you learned of your child's birth defect/difference- what was...
View ArticleRE: Practically Perfect in Every Way: Birth Defect affected families check in...
It is such an overwhelming piece of news, I wish someone would have called the next day when we had time to process everything just to chat and touch base and answer questions or made an immediate...
View ArticleRE: Practically Perfect in Every Way: Birth Defect affected families check in...
Our preemie son wasn't diagnosed until he was much older. We had concerns and had two serious conversations about it with our pediatrician at the time. He dismissed what we told him and we should have...
View ArticleRE: Practically Perfect in Every Way: Birth Defect affected families check in...
I hate that the go to is "Wait and see..." When I knew something was up with Charlie (she couldn't support her head at six months adjusted and hardly moved on her own), the general consensus was "Wait...
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Practically Perfect in Every Way: Birth Defect affected families check in...
Having a child or family member with a birth defect brings its own uniqueness to our stories. Â Chat with other parents and family members and share your story.
View ArticleRE: Very RARE Brain Birth Defect PLEASE HELP! :(
Hi and welcome to Share. I'm so sorry to hear of your son's birth defect. It sounds like a difficult road ahead for you and your family. Wishing you all the best. Prayers for Aiden.
View ArticleRE: Very RARE Brain Birth Defect PLEASE HELP! :(
I'm sorry to hear about your son's health. I hope you will be able to find the support you need here.
View ArticleVery RARE Brain Birth Defect PLEASE HELP! :(
Hi, my name is Nicole and my boyfriends name is Derek. I am 35 weeks pregnant and at 32 weeks we received some devastating news. Our unborn child Aiden has fluid in the ventricles in his brain. I was...
View ArticleRE: Birth Defect Malrotation Awareness
Im just finding this blog while searching on the internet. My daughter, at age 17 in 2013, found out she was born with malrotation only after going to a chiropractor to be "straightened" out before...
View ArticleRE: Adult with Repaired Severe Bilateral Clubfeet
I'm new having stumbled upon this site while searching because I've supported The March of Dimes as long as I can remember. I remember dime collections from the mid-'50s. My story may not inspire...
View ArticleAdult with Repaired Severe Bilateral Clubfeet
69 yrs. Ago, I was born in Hartford, CT. With severe bilateral clubfeet that were turned completely inward. My treatment started with casting at 3 mos., quickly moved to surgical repair 12 time and the...
View ArticleRE: Trying to see the positives
That's a lot for you to take on-responsibility, surgeries, side effects of his mother's pregnancy and financial considerations. He'd be lucky to have you but consider the impact on your lives from his...
View ArticleRE: Duodenal Atresia
Hi brooklyn mom, I am almost 33 weeks and just found out this week that my baby boy likely has a double bubble. As you can imagine this has been quite a shock considering everything was perfect up...
View ArticleRE: Trying to see the positives
Thank you for sharing your story. I don't really have any advice for you, but just wishing you all the best!
View ArticleRE: Duodenal Atresia
I know this is an old post but was wanting a update on your daughter. My daughter was diagnosed with the same. And we been on a roller coaster for the past 2 months.
View ArticleRE: Birth Defect Malrotation Awareness
Hi, I came across this website because I was searching for Malrotation. I am 30 years old and I have 3 children. I had a Malrotation diagnosed at 13. I was at cheerleading camp. My symptoms were...
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